Changing the Conversation with the National Foundation for Celiac Awareness

NFCAWe have all heard it a million times now…the gluten-free diet is considered a “fad diet” and little of the conversations and media reports actually include the real reason behind a gluten-free diet…CELIAC DISEASE. Not only does this frustrate those with celiac disease when we try to bring the conversation but it also leaves a negative impact on those that are actually living with the disease and and the severity of it. This is not a dietary choice, there is no cheating, this is necessity, it is our ONLY treatment, and it needs to be taken seriously.

During the month of June the NFCA is helping to change the conversation to what it should be about…celiac disease! Check out their first video HERE (or click the image below). Keep checking back from more information and videos throughout the month of June. Please share and be part of the change!

nfca_cc1.pngDon’t forget to check out National Foundation For Celiac Awareness on these social media sites:

Website     Facebook     Twitter     Pinterest     YouTube

Celiac Awareness Month Round-up {Awareness, NFCA PSA, and New Product Spotlight}

Celiac Awareness Month Round-up

I apologize now for an extremely long post but I wanted to make sure I covered all my bases for this round-up including spreading awareness to current and future dietitians, PSA from National Foundation for Celiac Awareness, and new gluten-free products.

Raising Awareness

For the last several years I have celebrated Celiac Awareness Month and raising awareness of Celiac Disease by hosting giveaways on this site. This year however, I wanted to do something different. While giveaways are awesome, fun, and it gets people involved I wanted to focus more on the awareness aspect of this month and help educate those around me. As many of you know I am currently pursuing my dream of becoming a Registered Dietitian and am honored to be completing my internship at NewYork-Presbyterian. In case you didn’t know, NYP is one of top six hospitals in the country and number one in New York. NYP is connected to two incredible medical colleges; Columbia University and Cornell University. Columbia is also home of one of the best Celiac Research Centers in this country, Celiac Disease Center at Columbia University. While my awareness event has no direct connection to the center, it is amazing to be in connection with them through the hospital.

I debated on offering giveaways for quite a while leading up to this month and finally decided that I think it would be more beneficial to spread awareness and knowledge to those around me…current and future dietitians. When I was diagnosed, I didn’t have a dietitian available to me and my doctor wasn’t the most knowledgeable in the area of celiac – she saw my results, said what I had, and said no more pasta or bread. That was all. Everything I learned, I learned on my own by way of Google, books, and some amazing bloggers out there. They were the ones that kick started my desire to start Creative Cooking Gluten Free and then to pursue the filed of Dietetics. I wanted to help people understand they can have these items, just more creatively. I also have the desire to help not only those with celiac but with other gastrointestinal disorders, food allergies, etc. I love the challenge of creating meal plans and recipes for those with multiple food allergies. My degrees in Culinary Arts and Culinary Nutrition go hand in hand with my studies in Dietetics…you can’t have one with out the other (at least that is my philosophy). I wanted to share with those pursing this field and also have a desire and passion for helping people gluten-free resources including educational materials and samples for them to try and be able to give a 100% honest feed back to a patient when they ask “do you have any suggestions on products?” “what is the best gluten-free…on the market”. We need to know these things because despite what some say, celiac disease is real, not a fad, and not going away.

Each month in our internship we have a Class Day, where all 32 of the interns come together and we have various sessions on topics in dietetics. May being celiac awareness month was the perfect month for me to share with this captive audience. I reached out to about 50 gluten-free companies, explaining what I wanted to do and who my targeted audience was, and asked if they would be willing to send some samples to be included in the “swag bags” that would be given to the current and future dietitians. Several responded that they had received too many requests, which is no surprise being that it was celiac awareness month, however the responses I received were overwhelmingly generous! I received samples, full sized products, educational materials, coupons, and more. This celiac community and their desire to help educate and raise awareness continually blow me away.

I recruited some help from a few of the other interns to help me put the “swag bags” together – we made a total of fifty to share with the current interns, our directors, and current dietitians at the hospital. The response was overwhelmingly positive and many great conversations were started because of this.

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(Celiac Awareness Month Swag Bags – ready to be handed out to current and future RD’s)

IMG_5777(NYP’s 90th & 91st Class of Dietetic Interns)

Thank you to all who helped make this event possible – I couldn’t have done this with out you and your extreme generosity.

Check out these mail deliveries I received! I seriously couldn’t even sleep in my room after the last shipment arrived.

It is always a pleasure to work with all of you on my blog over these last several years and I love that I have had the privilege to meet many of you at the last two Gluten Free and Allergy Free Expos in Secaucus, NJ. Looking forward to working with all of you again, and hopefully seeing you soon. Without you, none of this is possible!

Seriously, Celiac Disease – PSA from National Foundation for Celiac Awareness

Celiac Disease is serious…seriously it is! It is an Autoimmune Disease, not just a diet. It is not a fad diet created by Hollywood to make you lose weight. The gluten-free diet is the ONLY treatment for those with Celiac Disease. There is not cure. There is no magic pill to take. This is real life.

Do you have celiac disease and trying to figure out how to talk to your family members about being tested? Head on over to the National Foundation for Celiac Awareness’ site for important information, tips, and talking points and watch their PSA called Seriously, Celiac Disease HERE.

talk. tell. test.

New Gluten Free Product Spotlight

Here are some new gluten-free items worth checking out:

New from I Heart Keenwah: Quinoa Puffs (featured below, Aged Cheddar and Sweet Chili) – delicious little bits of goodness and loaded with 5 grams of protein per serving.

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Snyder’s of Berlin: Variety of Gluten-Free Chips – great for all the summer BBQ’s that are coming up.

Walkers – Gluten Free Shortbread Cookies. I remember this brand of shortbread cookies from when I was little. Learning a few months ago that they had come out with a gluten-free line of them, I was rather excited as it brought back some childhood memories of a hot cup of tea and shortbread cookies with my grandmother. The gluten-free line comes in three flavors: Chocolate Chip, Ginger & Lemon (sounds amazing to me!), and Pure Butter (below).

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Luna & Clif Bars – in case you missed it ALL Luna bars are now Gluten-Free!! Check out the new offerings from both companies below…the dark chocolate almond from Clif is so delicious and perfectly fits in my lab coat pocket!

Gluten-Free Frito-Lay Recipes

Don’t you just love when a favorite item or brand of yours is actually gluten free, and provides the information on their website! I know I do. I get abnormally excited over something that most would consider small, but to me its all about the small things in life. I’ve always been a fan of Frito-Lay’s products however, I never realized how many of them are gluten-free! Check out their recently updated list here. I think you will be presently surprised. This was brought to my attention by the National Foundation For Celiac Awareness (NFCA) when they asked if I would like to be a recipe tester for some of the new products.

I was assigned the Frito Waffles with Mascarpone and Warm Strawberry Compote. I had the option of changing up the recipe if I so desired to, however I rather liked it just as it was. The waffles were more on the savory side, but topped with the Mascarpone and Strawberry Compote made them a sweet-savory treat. I made these for my neighbor and myself whose respective other halves are away for the summer and she was recently told from her doctor that she needs to avoid gluten and wheat. They not only would be great for dinner but they made a mighty delicious dinner🙂

In addition to my recipe and post check out the NFCA’s page for additional recipes and bloggers:  http://www.celiaccentral.org/frito-lay/recipes/

Keep reading to learn how you can win your own Frito-Lay products!!

Frito Waffles with Mascarpone and Warm Strawberry Compote

175 grams (about 1 1/4 cups millet flour)
50 grams (3/4 cup) crushed Fritos® Original corn chips
1 tablespoon golden flaxmeal
1 tablespoon baking powder
1 cup milk
3 large egg yolks
1 teaspoon vanilla extract
1/3 cup melted butter
1/4 cup honey
3 large egg whites

Strawberry Compote
1 pound strawberries, hulled and quartered
1/4 cup sugar
2 teaspoon cornstarch
1 teaspoon vanilla

Mascarpone cheese

Combine flour, corn chips, flaxmeal, baking powder, milk, egg yolks, vanilla, butter and honey
in a blender container. Blend until smooth. Beat egg whites in a medium bowl until they form
soft peaks. Fold flour mixture into beaten egg whites until incorporated, being careful not to
deflate egg whites.

Pour about 1/2 cup of batter onto greased, heated griddle and cook until waffle is done,
according to manufacturer’s instructions. Repeat with remaining batter.

Combine strawberries, sugar, cornstarch and vanilla in a medium saucepan. Heat over medium
heat until juicy and thickened, stirring often.

Serve waffles with mascarpone cheese and warm strawberries.

Yield: about 9 waffles.

Notes:

To make these a little sweeter – maybe add a tablespoon of sugar

This recipe was pretty easy and quick to make. Again this is great for breakfast or dinner. Who doesn’t love breakfast for dinner? I know I do!

I ended up eight large waffles

My waffle maker is old (very old) so they came out a bit darker than I had hoped.

The strawberries and Mascarpone are fantastic on this – don’t add anything to the cheese, just add a dollop on top of the waffles and then top with the strawberry compote.

Head on over here to enter for your chance to win a prize package from Frito-Lay!